I want to tell you about what I have been planning for a couple months now, but first I have to explain how it came about. I am going to a conference in Orlando in May. It is FORCE's annual conference for people with BRCA1/BRCA2 or people who are otherwise at high-risk for hereditary breast or ovarian cancer. Breast, ovarian, prostate and other cancers have been rampant in my Dad's family for years. It has affected pretty much every member of a certain age range. When my cousin was diagnosed in her early thirties with breast cancer, she took the step of getting tested for the gene. She was positive for BRCA1. A few years later my Dad got tested in the hopes of eliminating the risk for his three daughters. He had a 50/50 chance, but he was positive as well. So a few years ago I finally got tested myself. I also came back positive. This gene mutation carries with it up to an 85% chance of getting breast cancer in my lifetime. These hereditary cancers also tend to strike earlier and be more aggressive. It also increases the ovarian cancer risk, which is notoriously hard to find early.
Everyone has BRCA1/BRCA2 genes. They are breast and ovary tumor suppressant genes. If you have the mutation, one copy of the gene is inactive. This means that you do not have the defense against developing cancer that people without the mutation have. (This is how I understand all the information. I do not claim to have a perfect grasp on it all. This is where the conference will help a bunch.)
I am excited about this conference. It will provide tons of information, straight from the people who really understand it all. It will give me a clearer picture of maintaining my frequent screenings, as well as discuss my preventative options. I am still secretly hoping Christina Applegate will pop up at the conference ;). She is also BRCA1 or BRCA2 positive...
A lot of people have mentioned to me that they would not want to know if they had the gene. I certainly can see their point of view. However, I feel much safer knowing my risk, and having my breast MRI and mammograms every year. I am a mother. I feel I need to do what ever I can to assure that I will be here for them.
*********************************************************************************************************************************************
Now! On to the lighter side of this post. I could not fly all the way to Orlando without visiting Disney World. Originally Justin and I were going to fly down together, and tack on a couple of days there alone. I have never been good at leaving my kids for any length of time though. Poor Ryan (at age 5 1/2), has still only spent like 2 nights away from me. Besides it was Disney World, right? I decided after talking to Ryan's teacher that I probably could pull them out of school. (I am pretty relaxed on this subject anyway.)
So, in only three months the four of us are flying to Florida for 7 nights. Two of the days, they will do their own thing in the parks while I am at the conference. The conference happens to be on Disney Resort property, so it works perfectly. We are staying at Disney's Coronado Springs Resort. They have an awesome Mayan Pyramid themed pool with a water slide, that the kids are going to love!
The other exciting thing is that we will be there over Ryan's 6th birthday. This ties in perfectly with Disney's What will You Celebrate campaign. We cannot wait for this trip. It is going to be even more fun because we learned so much two years ago when we went.